China has one of the biggest populations in the World. However, it has a low incidence of myotonic dystrophy. Here, however, is information in Chinese. You can also use the google translator on our site although we can not vouch for the accuracy.
| Chinese Facts About Myotonic Dystrophy pdf |
| Found at ebookbrowse.com |
The Muscular Dystrophy Association of the USA (MDA) announced its winter research grants. 13.6 million was awarded including two grants for Myotonic Dystrophy research. One grant to doctor Disney will explore the possible therapeutic effects of small molecule approach for DM2. This would be a strong complement to the DM1 research that is ongoing in his lab.
The other grant to Dr. Mockton is to research the effect of Triplet expansion and stability on the likely course of the Myotonic Dystrophy Disease.
MDA is spending 4.6 of its research grant budget this winter on Myotonic Dystrophy Research.
My son Chris has had multiple issues with Pneumonia including multiple hospitalizations and ventilator support. I found this nice article on Respiratory support that is pretty technical. The part on General measures is below and you can link here to the actual article..Respiratory Consequences or Neuromuscular Disease. We have done the following with Chris
Recently the MDF (Myotonic Dystrophy Foundation) announced the launching of a new patient registry. This registry looks very exciting and apparently will be some kind on interactive database. The database will help both patients and researchers. The patients will benefit by hopefully more easy access to clinical trials that will be starting soon. Researchers benefit by reducing the cost of finding and identifying patients with DM. Click here for the announcement from the MDF Here is the new logo for the Registry
Make sure to sign up for this registry when it is available later this month
The Rachel Fund for Myotonic DystrophyMuscular Dystrophy Canada and the Institute of Musculoskeletal Health and Arthritis are pleased to announce the third joint competition of the Rachel Fund. Launched originally in 2006, the Rachel Fund is proudly supported by Tribute Communities, a generous donor to Muscular Dystrophy Canada.
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