The 12th bi-annual IDMC (International Myotonic Dystrophy Consortium) meeting will be held in Gothenburg, Sweden From June 10-14th of 2019. This is a biannual meeting of the key researchers in the Myotonic Dystrophy Space.. This conference is very scientific generally requiring a masters level or greater science skills in the biological area. There is usually attached a lay conference for DM1 and DM2 for those that want to have some interaction with the Myotonic Dystrophy scientists and glean the latest and greatest from the community. See www.idmc12.org for more information.
Some family members attend just to get a sense of the scientific community and the direction of the research and state of the art in potential therapies.
Registration Fee for non-scientists is about $400 for the full program or $40 for the patient program which is one day. The fees are paid in Swedish currency. The description of the patient day (which will be in Swedish I think) is as follows:
THE PATIENT PROGRAM IS BELOW:
Welcome to a lecture day for you with Dystrophy Myotonika and your relatives In connection with the international conference on dystrophia myotonika IDMC -12 in Gothenburg, a lecture day will be arranged for the patient group and their relatives. International lecturers from IDMC-12 will be invited together with Swedish lecturers, where the current research situation will be presented. Programs for the day will be available on the conference's website https://idmc12.org/ The lecture day will be held at Dalheimer's house on June 14, 2019. The program starts at 10:00 but with registration and coffee from 9.00. The day ends at 16.00. The cost of the day is 400 Incl VAT (320 excl. VAT) and includes lecture, coffee and lunch. All prices are listed in sec and excluding 25% VAT.