We are continuing to list doctors that have a working knowledge of DM. Most doctors will not have any patients that have had DM because the incidence of the disease is about 1/8000 and the average doctor will have less than 3000 patients. Usually about 2000 patients in multigroup practice. Thus the burden is on you to educate the doctor or find a doctor that has seen many DM patients. These doctors come to us from our members reporting from their experience. If you know a good doctor please let us know so we can add them to the site.
From: Janet Moravec mspootsma1@aol.com
I would like to submit to you two doctors who I found to be very interested and knowledgeable. They both are affiliated with the University of Florida in Gainesville, FL, Shands Medical Center. I asked for their approval to submit their names and it was approved. These are the doctors I am going to. I have great confidence in their abilities, and as you know that is half the battle.
Melvin Greer, MD, Professor and Chairman – Dept of Neurology
e-mail – greerm@neurology.ufl.edu
phone – (352) 265-8408
M. Tariq Bhatti, MD, Associate Professor, Neuro-opthalmology Service
Dept of Opthalmology
e-mail – tbhatti@eye1.eye.ufl.edu
phone – (352) 846-2102
Diagnosed with Myotonic Dystrophy, DM1, in April, 2006. Looking for a doctor in the Indianaplois area with knowledge of this disease. Most doctors I have met with seem to lack knowledge.