MD Care Act Reauthorization 2013

MD CARE Act Reauthorization (2013) Your help is needed

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The passage of the original MD CARE Act in 2001 was a “game changer” for the myotonic muscular dystrophy community, and since that time, we have  “moved the needle” in clinical care and therapy development. The MD community worked hard to ensure that the MD CARE Act would become law, and all our efforts paid off. The Rochester Center for excellence was established and has provided great strides in myotonic dystrophy research. But this helps not only myotonic dystrophy.

Every day, scientists in some of the world’s best research facilities are making exciting discoveries, developing new drugs for the treatment of muscular dystrophies, and improving the quality of therapeutic treatment and clinical efforts — all at an unprecedented pace. Since 2001, there have been 67 clinical trials of drugs or therapies for muscular dystrophy, and currently 37 clinical trials are under way. But, a great deal of work still needs to be done, and increased federal support is needed to ensure that researchers can continue making progress toward finding a cure. A stronger commitment from the federal government also will help to ensure that MDA’s life-changing momentum continues.

That’s why we’re asking you — and your neighbors, co-workers and others in your spheres of influence — to take five minutes and contact your local elected officials. We need your help by encouraging your elected officials to support The Paul D. Wellstone Muscular Dystrophy Community Assistance, Research and Education (MD CARE) Amendments Act of 2013 (H.R. 594/S. 315) by signing on as a co-sponsor.

Click here to see how the MD CARE Act has helped to ‘move the needle’

Current co-sponsors (House and Senate)

The MD community is building tremendous momentum as new co-sponsors are signing on in support of the MD CARE Act of 2013 every day. With 26 co-sponsors in the House and 10 in the Senate, we’re off to a strong start.

H.R. 594 (48 co-sponsors)
Sponsor: Rep. Michael Burgess (TX); introduced Feb. 8, 2013
Latest major action: Referred to House committee Feb. 8, 2013. Status: Referred to the House Committee on Energy and Commerce.

Rep. Robert Andrews (NJ-1) — 2/25/2013
Rep. Spencer Bachus (AL-6) — 2/25/2013
Rep. Sanford D. Bishop Jr. (GA-2) — 2/25/2013
Rep. Julia Brownley (CA-26) — 2/25/2013
Rep. Mike Coffman (CO-6) — 3/12/2013
Rep. Diana DeGette (CO-1) — 3/12/2013
Rep. Randy J. Forbes (VA-4) — 3/21/2013
Rep. Keith Ellison (MN-5) — 2/25/2013
Rep. Eliot L. Engel (NY-16) — 2/8/2013
Rep. Cory Gardner (CO-4) — 3/12/2013
Rep. Jim Gerlach (PA-6) — 3/6/2013
Rep. Sam Graves (MO-6) — 2/25/2013
Rep. Gene Green (TX-29) — 2/25/2013
Rep. Brett Guthrie (KY-2) — 3/12/2013
Rep. Ralph M. Hall (TX-4) — 2/25/2013
Rep. James A. Himes (CT-4) — 3/21/2013
Rep. Rush Holt (NJ-12) — 2/25/2013
Rep. Sam Johnson (TX-3) — 3/5/2013
Rep. Derek Kilmer (WA-6) — 2/25/2013
Rep. Ron Kind (WI-3) — 3/5/2013
Rep. Peter T. King (NY-2) — 2/25/2013
Rep. Daniel Lipinski (IL-3) — 3/12/2013
Rep. David Loebsack (IA-2) — 3/5/2013
Rep. Nita M. Lowey (NY-17) — 2/25/2013
Rep. Blaine Luetkemeyer (MO-3) — 3/5/2013
Rep. Carolyn B. Maloney (NY-12) — 2/25/2013
Rep. Edward J. Markey (MA-5) — 2/25/2013
Rep. Doris O. Matsui (CA-6) — 2/25/2013
Rep. Betty McCollum (MN-4) — 3/19/2013
Rep. Michael H. Michaud (ME-2) — 3/12/2013
Rep. William L. Owens (NY-21) — 2/25/2013
Rep. Ed Perlmutter (CO-7) — 3/12/2013
Rep. Collin C. Peterson (MN-7) — 2/25/2013
Rep. Ted Poe (TX-2) — 2/25/2013
Rep. Jared Polis (CO-2) — 3/6/2013
Rep. James B. Renacci (OH-16) — 3/19/2013
Rep. E. Scott Rigell (VA-2) — 3/19/2013
Rep. Jon Runyan (NJ-3) — 2/25/2013
Rep. Bobby L. Rush (IL-1) — 2/25/2013
Rep. Allyson Y. Schwartz (PA-13) — 2/25/2013
Rep. Pete Sessions (TX-32) — 2/25/2013
Rep. Carol Shea-Porter (NH-1) — 2/25/2013
Rep. Louis McIntosh Slaughter (NY-25) — 2/25/2013
Rep. Adam Smith (WA-9) — 3/5/2013
Rep. John F. Tierney (MA-6) — 3/5/2013
Rep. Peter Welch (VT) — 2/25/2013
Rep. Robert J. Wittman (VA-1) — 3/5/2013
Rep. Don Young (AK) — 3/19/2013

S. 315 (13 co-sponsors)
Sponsor: Sen. Amy Klobuchar (MN); introduced Feb. 13, 2013
Latest major action: Referred to Senate committee Feb. 13, 2013. Status: Read twice and referred to the Committee on Health, Education, Labor and Pensions.

Sen. Barbara Boxer (CA) — 2/28/2013
Sen. Thad Cochran (MS) — 2/28/2013
Sen. Susan M. Collins (ME) — 2/13/2013
Sen. Johnny Isakson (GA) — 2/13/2013
Sen. Angus S. King Jr. (ME) — 3/11/2013
Sen. Frank R. Lautenberg (NJ) — 2/13/2013
Sen. Patrick J. Leahy (VT) — 2/13/2013
Sen. Robert Menendez (NJ) — 2/13/2013
Sen. Barbara A. Mikulski (MD) — 2/13/2013
Sen. Bill Nelson (FL) — 2/13/2013
Sen. Bernard Sanders (VT) — 2/13/2013
Sen. Charles E. Schumer (NY) — 2/25/2013
Sen. Roger F. Wicker (MS) — 2/13/2013

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