There has been a lot of information about this but nothing published. Here are a few posts on the subject, from an older discussion board. Please add comments to add to the body of knowledge.

This question was submitted to an older discussion board and the family would appreciate any information that is available:

My daughter has myotonic dystrophy and in the past nine months started to have terrible problems with her periods. For three weeks out of four she is in consistent pain and is very poorly with them. Do you think that this could be connected with MD being soft muscle or are we looking at something else as well. Any suggestions for treatment or medications. Any doctors that can help?
Continue reading →