Tag Archives: Conference

June 7th Myotonc Dystrophy Conference in the UK

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The MDSG is holding an excellent conference in Nottingham England on the June 7th

This is an excellent conference. Its difficult to get to. When I went last here we had to fly in and then take a bus and cab to Nottingham. Its a delight if you can get there with good friends and companionship.

Each year (usually in April,May or June) the Group hosts a full day conference at a regional venue. Specialist speakers covering a wide selection of topics affecting Myotonic Dystrophy are invited. Workshops covering a number of related issues are also provided.

2014 Conference will be held at :

East Midlands Conference Centre & Orchard Hotel,

University Park, The University of Nottingham,

Nottinghamshire,NG7 2RJ

Sat Nav:Lat: 52.940983 Long: -1.208081

Telephone: 0871 222 4836

On Saturday the 7th of June 2014.

 

Each year (usually in April,May or June) the Group hosts a full day conference at a regional venue. Specialist speakers covering a wide selection of topics affecting Myotonic Dystrophy are invited. Workshops covering a number of related issues are also provided.

2014 Conference will be held at :

East Midlands Conference Centre & Orchard Hotel,

University Park, The University of Nottingham,

Conferences.

Each year (usually in April,May or June) the Group hosts a full day conference at a regional venue. Specialist speakers covering a wide selection of topics affecting Myotonic Dystrophy are invited. Workshops covering a number of related issues are also provided.

2014 Conference will be held at :

East Midlands Conference Centre & Orchard Hotel,

University Park, The University of Nottingham,

Nottinghamshire,NG7 2RJ

Sat Nav:Lat: 52.940983 Long: -1.208081

Telephone: 0871 222 4836

On Saturday the 7th of June 2014.

,NG7 2RJ

Sat Nav:Lat: 52.940983 Long: -1.208081

Telephone: 0871 222 4836

On Saturday the 7th of June 2014.

Wonderful Conference in San Fransisco

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The conference in San Fransisco was awesome. Loved every minute of it. Met some wonderful people. I got to the conference on the Thurs night. It was an awesome night. Saw Molly white the new executive director she and Amy were running ragged trying to keep everything together. Had a chance to talk with a number of families that night you had come across country for the conference.

Unfortunately I came down sick that night. maybe some food I should not have eaten. I went to an Afghan Restaurant and maybe that did it. Anyway I was able to come and see the first session Cardiac issues which was a lot of fun and very informative.The next session was DM Care and the Advocate’s Role, Dr. Cynthia Gagnon. This was an excellent presentation. She at the end went over the importance of a nurse advocate in working with DM patients. Cynthia is from Canada and they have many resources available in Quebec to help. They are working on the new checklist for management of myotonic dystrophy which is part of an international consortium. Some thoughts here:

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