MDA Issues Winter Research Grants

The Muscular Dystrophy Association of the USA (MDA) announced its winter research grants. 13.6 million was awarded including two grants for Myotonic Dystrophy research. One grant to doctor Disney will explore the possible therapeutic effects of small molecule approach for DM2. This would be a strong complement to the DM1 research that is ongoing in his lab.

The other grant to Dr. Mockton is to research the effect of Triplet expansion and stability on the likely course of the Myotonic Dystrophy Disease.

MDA is spending 4.6 of its research grant budget this winter on Myotonic Dystrophy Research.

Continue reading

MDA Canada Last registration date Today Feb 1, 2013 for $300,000 Myotonic Dystrophy Grants

The Rachel Fund for Myotonic Dystrophy

Muscular Dystrophy Canada and the Institute of Musculoskeletal Health and Arthritis are pleased to announce the third joint competition of the Rachel Fund. Launched originally in 2006, the Rachel Fund is proudly supported by Tribute Communities, a generous donor to Muscular Dystrophy Canada.

Founded over 25 years ago, Tribute Communities is a leading builder of new homes and condominiums with a mission to create distinctive, visionary communities. Our exquisite lowrise communities are enhanced by natural beauty, old-world charm and a friendly ambience. Streetscapes present a fresh, bright appeal, with heritage touches that celebrate the past. Our condominiums are vibrant expressions of urban style, with iconic architecture, sophisticated designs and spectacular amenities. Whether living in a signature Tribute single family home or an elegant Tribute condominium, our customers can be sure of one thing: their home has been built by passionate people who truly care about bringing dreams to life. This is an absolute wonderful company that is very supportive of its community!

Financial Assistance for DM1 kids with Autism or ASD

As many parents with children with myotonic dystrophy know a high percentage of kids with this disease have autism or autism spectrum disorder. Because the childhood form is not a separate disease this often cause a lack of support from the medical profession. This website is building awareness of the autism and ASD within the myotonic dystrophy community.

Often kids with DM1 and Autism disorders need help and assistance. I have found an organization that assits with Autistic kids and gives grants. The group is called Act-Today.
They are a great organization and have given many grants. Click on the name above to go to their website. Here are a few of the people that they have helped. This is a great organization and I would encourage you to visit their website. IF needed you can apply for a grant for assistance!.

Continue reading