A recent article explored Chronic Pain and myotonic dystrophy. (click on link for full study). this is something that many of our patients experience. Heat was being used by 26% of patients. The only treatment that was relatively highly effective and was still being used by a substantial number of patients (26%) was heat. Perhaps this is because heat is an extremely accessible treatment (most people own a hot water bottle or heating pad) that has few, if any, negative side effects.
There is no definitive information on cold weather and it’s effects on patients with myotonic dystrophy vary from person to person. Some individuals have reported problems, and here is some information collected from various resources. Its clear that for some individuals there is a mild moderate effect, for others its more severe. If possible plan long term to move to a more temperate climate without harsh winters.